“And however difficult life may seem, there is always something you can do and succeed at. It matters that you don’t just give up.”– Stephen Hawking
I’m Lindsey and I’m feeling about 95 years old these days, and yes, I can be a bit sarcastic. It’s a coping mechanism really. But I do have a chronic illness called Marfan syndrome that I have had from birth (it’s genetic). Having a chronic illness that is complex and that affects many body systems, means that you really are tired ALL the time. Energy is a challenge and I fight with it daily.
For the first 4 decades of my life, I was also visually impaired and had about 10 percent normal vision. Over the years, my vision has been improved as medical technology advanced and now I have about 20/35 with glasses for distance. Although there was a price to pay for that new vision in my left eye. I have lost the vision in my right eye completely, as in, it is dark, yes, completely blind. So you take the good with the bad, literally. That’s just the basics of my eyes.
I’ve had 3 open heart surgeries, have
a repaired mitral valve, an artificial aortic valve and dacron aortic root, and as a result, I am on blood thinners for life. I have scoliosis, kyphosis, dural ectasia, joint and hypermobility issues, high palate, IBS, depression, chronic back pain and chronic fatigue.
In spite of all of that, I have a career and work in marketing and communications, currently in the investment/financial services industry. I also volunteer with the Genetic Aortic Disorders Association Canada in Toronto.
Then I had a stroke a year and a half ago and now I am on leave from my career, so I thought I’d start a blog in order to;
- Give myself a purpose
- Share the challenges and accomplishments after stroke, heart surgery, eye surgeries, and possibly provide some motivation to others who may be going through some of the same.
- Laugh at myself and keep perspective alive
- Share awareness of rare disorders
- Practice and improve my writing – my stroke left me with aphasia which affects communication and language skills.